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Selected Publication:

SHR Neuro Cancer Cardio Lipid Metab Microb

Purdie, R; Kuran, R; Alastruey-Izquierdo, A; Sati, H; Rodriguez-Tudela, JL; Hoenigl, M; Perfect, J; Oladele, R; Walsh, TJ; Chiller, T.
Advancing Patient Advocacy in Mycology: Cultivating Collaboration in Education, Research, and Policy.
Mycopathologia. 2025; 190(1): 11 Doi: 10.1007/s11046-024-00906-6 [OPEN ACCESS]
Web of Science PubMed PUBMED Central FullText FullText_MUG

 

Leading authors Med Uni Graz
Hönigl Martin
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Abstract:
In the healthcare landscape, diseases such as cancer and HIV/AIDS have benefited from the patient's perspective. For fungal diseases, the patient voice remains absent in critical areas such as policy formulation, funding decisions, and research priorities. Patients affected by fungal disease, along with their caregivers and advocacy groups, possess invaluable insights into the challenges and unmet needs they face. By elevating their voices and experiences, policymakers, funding agencies, and researchers can gain a more comprehensive understanding of the multifaceted nature of fungal disease and the urgency of addressing them. This paper addresses the pressing need for a coordinated effort to elevate the patient voice in advocating for improved policies, increased funding, and enhanced research initiatives regarding fungal disease.
Find related publications in this database (using NLM MeSH Indexing)
Humans - administration & dosage
Patient Advocacy - administration & dosage
Mycology - trends
Mycoses - administration & dosage
Health Policy - administration & dosage
Biomedical Research - administration & dosage

Find related publications in this database (Keywords)
Fungal disease
Mycology
Fungus
Patient advocacy
Lived experience
AMR
Antimicrobial resistance
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