Medizinische Universität Graz Austria/Österreich - Forschungsportal - Medical University of Graz
Gewählte Publikation:
Belosa, V.
Standards der pädiatrischen Palliativversorgung in Europa und Bedarfsanalyse für den Raum Steiermark
[ Diplomarbeit/Master Thesis ] Medizinische Universität Graz; 2009. pp.63.
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- Autor*innen der Med Uni Graz:
- Betreuer*innen:
- Strohscheer Imke
- Urban Ernst-Christian
- Altmetrics:
- Abstract:
- Aims: In 2007 the Task Force Paediatric Palliative Care of European Association for Palliative Care set in their IMPaCCT-Statement new minimal standards of paediatric palliative care for Europe. Now its our purpose to fulfill these minimal standards in the next years. Methods: We utilised the methods of health care needs assessment, that means the epidemiological and corporate approach. We collected views and demands of the stakeholders(physicians, nurses, psychologists, hospice workers, volunteers) in the University Hospital of Graz on this subject. Results:Statistik Austria reported that 101 children, adolescent and young adults (0-25 years) died in Styria in the year 2007, 27 children (12 male, 15 female) of palliative care relevant diseases. The children died of congenital anomalies (48%) and malignant neoplasia (22%). The others distribute to disorders of the nervous system (11%), diseases of heart and circulation systems (7%), blood (4%), digestion organs (4%) and respiratory organs (4%). There is a lack of existing structures for paediatric palliative care in Styria, although palliative care relevant diseases are with 27% the biggest group of all diseases in this age. In the interviews stakeholders shared the same wishes concerning training in palliative medicine and a development of an interdisciplinary children palliative care team who works and cooperates with another institutions like hospices, hospitals or outpatient services. Conclusions: A seamless transition between settings could be achieved by founding of an interdisciplinary care team with sufficient expertise to address the physical, psychosocial, emotional and spiritual needs of the child and family. The existing structures like adult hospices and resident podiatrists could work together with children psychologists, out patient services, schools, social workers and proper authorities. There should be a central coordinator who is 24 hours and 365 days a year available for the family. It also emphasizes the need for improved education for staff members.