Medizinische Universität Graz Austria/Österreich - Forschungsportal - Medical University of Graz
Gewählte Publikation:
SHR Neuro Krebs Kardio Lipid Stoffw Microb
Barnard-Kelly, K; Marrero, D; de, Wit, M; Pouwer, F; Khunti, K; Hermans, N; Pierce, JS; Laffel, L; Holt, RIG; Battelino, T; Naranjo, D; Fosbury, J; Fisher, L; Polonsky, W; Weissberg-Benchell, J; Hood, KK; Schnell, O; Messer, LH; Danne, T; Nimri, R; Skovlund, SE; Mader, JK; Sherr, JL; Schatz, D; O'Neill, S; Doble, E; Town, M; Lange, K; de, Beaufort, C; Gonder-Frederick, L; Jaser, SS; Liberman, A; Klonoff, D; ElSayed, NA; Bannuru, RR; Parkin, CG; Snoek, F.
Towards the standardisation of adult person-reported outcome domains in diabetes research: A Consensus Statement development panel.
Diabet Med. 2024; 41(8):e15332
Doi: 10.1111/dme.15332
Web of Science
PubMed
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- Co-Autor*innen der Med Uni Graz
- Mader Julia
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- Abstract:
- Diabetes is unique among chronic diseases because clinical outcomes are intimately tied to how the person living with diabetes reacts to and implements treatment recommendations. It is further characterised by widespread social stigma, judgement and paternalism. This physical, social and psychological burden collectively influences self-management behaviours. It is widely recognised that the individual's perspective about the impact of trying to manage the disease and the burden that self-management confers must be addressed to achieve optimal health outcomes. Standardised, rigorous assessment of mental and behavioural health status, in interaction with physical health outcomes is crucial to aid understanding of person-reported outcomes (PROs). Whilst tempting to conceptualise PROs as an issue of perceived quality of life (QoL), in fact health-related QoL is multi-dimensional and covers indicators of physical or functional health status, psychological and social well-being. This complexity is illuminated by the large number of person reported outcome measures (PROMs) that have been developed across multiple psychosocial domains. Often measures are used inappropriately or because they have been used in the scientific literature rather than based on methodological or outcome assessment rigour. Given the broad nature of psychosocial functioning/mental health, it is important to broadly define PROs that are evaluated in the context of therapeutic interventions, real-life and observational studies. This report summarises the central themes and lessons derived in the assessment and use of PROMs amongst adults with diabetes. Effective assessment of PROMs routinely in clinical research is crucial to understanding the true impact of any intervention. Selecting appropriate measures, relevant to the specific factors of PROs important in the research study will provide valuable data alongside physical health data.
- Find related publications in this database (using NLM MeSH Indexing)
- Humans - administration & dosage
- Patient Reported Outcome Measures - administration & dosage
- Quality of Life - administration & dosage
- Diabetes Mellitus - therapy, psychology
- Adult - administration & dosage
- Consensus - administration & dosage
- Health Status - administration & dosage
- Find related publications in this database (Keywords)
- depression
- distress
- person-reported outcomes
- quality of life
- treatment satisfaction
- type 1 diabetes
- type 2 diabetes