Medizinische Universität Graz Austria/Österreich - Forschungsportal - Medical University of Graz
Gewählte Publikation:
SHR Neuro Krebs Kardio Lipid Stoffw Microb
Pugin, B; Deneyer, L; Bachert, C; Alobid, I; Bousquet, J; De Carlo, G; Fokkens, WJ; Gane, S; Hopkins, C; Holzmeister, C; Langdon, C; Lourijsen, ES; Lund, VJ; Marien, G; Mavris, M; Mullol, J; Pereira-Perez, C; Tomazic, PV; Vanderveken, O; Hellings, PW; Seys, SF.
Patient Advisory Board for Chronic Rhinosinusitis - A EUFOREA initiative.
Rhinology. 2019; 57(5): 331-335.
Doi: 10.4193/Rhin19.012
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- Co-Autor*innen der Med Uni Graz
- Holzmeister Clemens
- Tomazic Peter Valentin
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- Abstract:
- Despite the high prevalence of chronic rhinosinusitis (CRS) and its impact on patients' quality of life, no European patient organization that advocates for patients with CRS currently exists. To fill this gap and give a voice to CRS patients, EUFOREA has created a patient advisory board, whose goal is to better understand the real-life needs of patients, to raise awareness at political level and to involve patients in the development of novel integrated solutions to accelerate access to accurate diagnosis and treatments. This report summarizes the key discussion points from the kick-off meeting of the board on the 8th June 2018 and provides an outline of the key objectives for the future.
- Find related publications in this database (Keywords)
- chronic rhinosinusitis
- asthma
- nasal polyps
- patients
- advisory board