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Selected Publication:
SHR Neuro Cancer Cardio Lipid Metab Microb
Marinello, E; Linder, D; Spoto, A; Palmer, K; Rohrer, PM; Büchi, S; Trapp, M; Trapp, EM; Hoerlesberger, N; Piaserico, S; Peserico, A; Gatta, M; Belloni Fortina, A.
Assessing the Impact of Atopic Dermatitis on the Patients' Parents with the Visual Instrument 'Caregiver-PRISM'.
Dermatology. 2016; 232(4):490-495
Doi: 10.1159/000448030
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- Co-authors Med Uni Graz
- Hörlesberger Nina
- Linder Michael Dennis
- Rohrer Peter Michael
- Trapp Eva-Maria
- Trapp Michael
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- Abstract:
- There is a need to improve the quality of communication between clinicians and parents of young patients with atopic eczema (AE). To create a tool to measure the suffering that caregivers experience in association with their child's AE (Caregiver Pictorial Representation of Illness and Self-Measure, Caregiver-PRISM), assess the validity and reliability, and identify factors associated with caregiver suffering. Caregiver-PRISM was administered to 45 parents of patients from an AE outpatient service (Padua, Italy). Caregiver-PRISM had a good test-retest reliability (r = 0.85; t7 = 4.13; p < 0.05), content validity and construct validity when used in parents of AE children. Parents with a less positive family affective climate, higher education, or with children following a diet experienced higher suffering associated with their child's AE, demonstrated by lower Caregiver-PRISM scores (p < 0.05). Our results support the use of Caregiver-PRISM in parents of AE patients to assess suffering associated with patients' illness. © 2016 S. Karger AG, Basel.
- Find related publications in this database (Keywords)
- Burden of disease
- Caregiver
- Suffering
- Chronic disease