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Hudelist, G; Fritzer, N; Thomas, A; Niehues, C; Oppelt, P; Haas, D; Tammaa, A; Salzer, H.
Diagnostic delay for endometriosis in Austria and Germany: causes and possible consequences.
Hum Reprod. 2012; 27(12):3412-3416 Doi: 10.1093/humrep/des316 [OPEN ACCESS]
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Co-Autor*innen der Med Uni Graz
Tammaa Ayman
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Abstract:
What is the length of the diagnostic delay for endometriosis in Austria and Germany, and what are the reasons for the delay? The diagnostic delay for endometriosis in Austria and Germany is surprisingly long, due to both medical and psychosocial reasons. Diagnostic delay of endometriosis is a problematic phenomenon which has been evaluated in several European countries and in the USA, but has not been reported for Germany and Austria. A cross-sectional, questionnaire-based multicentre study was conducted in tertiary referral centers in Austria and Germany. From September 2010 to February 2012, 171 patients with histologically confirmed endometriosis were included. Patients with a previous history of surgically proven endometriosis, internal diseases such as rheumatic disorders, pain symptoms of other origin, gynecological malignancy or post-menopausal status were excluded from the analysis. Patients with histologically confirmed endometriosis completed a questionnaire about their psychosocial and clinical characteristics and experiences. Of 173 patients, two did not provide informed consent and were excluded from the study. The median interval from the first onset of symptoms to diagnosis was 10.4 (SD: 7.9) years, and 74% of patients received at least one false diagnosis. Factors such as misdiagnosis, mothers considering menstruation as a negative event and normalization of dysmenorrhea by patients significantly prolonged the diagnostic delay. No association was found between either superficial and deep infiltrating endometriosis or oral contraceptive use and the prolongation of diagnosis. There was a possible selection bias due to inclusion of surgically treated patients only. Several factors causing prolongation of diagnosis of endometriosis have been reported to date. The principal factors observed in the present study are false diagnosis and normalization of symptoms. Teaching programs for doctors and public awareness campaigns might reduce diagnostic delay in Central Europe. No competing interests exist.
Find related publications in this database (using NLM MeSH Indexing)
Adult -
Attitude to Health -
Attitude to Health - epidemiology
Cross-Sectional Studies -
Delayed Diagnosis -
Diagnostic Errors -
Dysmenorrhea - etiology
Endometriosis - diagnosis
Endometriosis - epidemiology
Endometriosis - surgery
Female -
Female - epidemiology
Humans -
Menarche - psychology
Menstruation - psychology
Surveys and Questionnaires -

Find related publications in this database (Keywords)
diagnosis
endometriosis
diagnostic delay
reasons
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