Medizinische Universität Graz Austria/Österreich - Forschungsportal - Medical University of Graz
Gewählte Publikation:
SHR Neuro Krebs Kardio Lipid Stoffw Microb
Stockler-Ipsiroglu, S; Herle, M; Nennstiel, U; Wendel, U; Burgard, P; Plecko, B; Ipsiroglu, OS.
Inborn metabolic diseases. Special aspects of the care of children from immigrant families
MONATSSCHR KINDERHEILK 2005 153: 22-+.
Doi: 10.1007/s00112-004-1072-3
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- Co-Autor*innen der Med Uni Graz
- Plecko Barbara
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- Abstract:
- A large percentage (20-50%) of the patients in Austria and Germany who have metabolic diseases come from Turkish immigrant families. The risk of suffering from a metabolic disease detected by the extended newborn screening program, is significantly higher in children from Turkish families than in those from native German and Austrian families. One reason for this is the tradition of consanguineous marriages (marriages between cousins) in this population. Follow-up data of children with phenylketonuria show that dietary compliance is poorer among Turkish children than among Austrian children. Investigations of the determinants of compliance revealed differences between Turkish and Austrian families in their knowledge about the disease and in their coping strategies, their belief in fate, and their dependence on medical personnel. Knowledge of the special aspects of dealing with patients from foreign cultures, the involvement of professional interpreters in consultations with patients and the active recruitment of immigrants to self-help groups are essential steps that will have to be taken for medical care to be improved in this population.
- Find related publications in this database (Keywords)
- metabolic diseases
- genetics
- epidemiology
- consanguineous marriage