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PRIVIREAL:Implementation of the data protection directive in relation to medical research and the role of ethics committees

Abstract

Protection of privacy of subjects in medical research as much on ethics review as on data protection law, but little is known about how this interacts with implementaion of Drictive 95/46/EC to protect privacy. Privireal brings together experts on relevant law and on ethics review of medical research form across the EU and Norway to evaluate the interaction between implementation of the Directive and research ethics review in protecting Directive rights of research subjects, with a view to make recommendations to the Commission about how to optimise protection provided by research ethics review. A consultation will be conducted, employing a web site. There will be 3 workshops, the proceedings of which will be published.

Local Subprojectlead:

Rehak Peter

Duration:

01.12.2001-30.11.2004

Programme:

EU (FP-5)

Subprogramme

Quality of Life

Staff

Rehak, Peter, Project Leader

MUG Research Units

Department of Surgery

Project partners

Midland Bakery Engineers Ltd, United Kingdom

University of Sheffield, United Kingdom

Funded by

Europäische Kommission, Rue de la Loi, Brussels, Belgium